However, Justin forwarded me this article today from MedlinePlus: http://www.nlm.nih.gov/medlineplus/news/fullstory_115574.html.
It's entitled "Children With Food Allergies Often Face Skepticism". It's interesting, informative, and a little shocking when you read about, for example, family members giving kids food they're allergic to just to see if there's a reaction. I will take the opportunity to share my opinion on that: how cruel.
I was at a Rockies game yesterday for a staff event. I was sitting next to two lovely ladies (both with no kids), one of whom is probably one of my favorite people at work. She has a heart of gold and a special mission to adopt dogs who are in their golden years. They were asking me how Jacoby's been doing and wanted to know more about the food allergies our boys have. It was an interesting conversation on several levels:
~~They were shocked to learn that both of my boys have life-threatening food allergies, that we carry epi-pens wherever we go, and that their lives would actually be in danger if they ingested something they weren't supposed to.
~~They were very interested in thinking about all of the places where our boys would not be safe: restaurants, Coors Field (as we sat surrounded by fans munching on peanuts; and actually the Rockies have started hosting a game each season for allergic kids to attend in a special club box), bakeries, etc. One asked if I was nervous sitting amongst all of the peanut munchers. And I said that I wasn't (but I spared her the details about how I would have to change my clothes as soon as I got home, wash my hands and arms before I hugged my kids, and how I would need to leave my shoes in the garage until I figured out some way to scrub them off).
~~They wanted to know how I felt about kindergarten in light of our food allergies. Everyone in the world wants to know how I'm feeling about kindergarten these days!! I told them honestly that Justin and I probably weren't as excited about it as other parents might be and that it makes us anxious. I shared that we were exploring "other options". And they of course asked what those were...it's truly amazing how big people's eyes get when you mention "homeschooling".
So, it was a great conversation because I got to share about our lives and impart a little more awareness about food allergies to two people who didn't know a lot about them. Having simple conversations with others is where I feel I can be most effective in spreading the word about food allergies while also advocating for my two boys.
Here's what I want people to know about us and the food allergies we deal with:
~~They are real. They are serious. They are deadly.
~~Our lives are vastly different from those who don't live with food allergies. We bring our own food everywhere we go. We take a lot of precautions when we’re out in public, and we’re always thinking about cross-contamination when we’re eating outside of our home. I'm sure some would consider things we do as excessive or extreme (see article above), but that's the way life has to be with food allergies. We’re not trying to be difficult or garner special attention. There just simply is not a lot of room for accident or error.
~~It's not easy living with food allergies. In fact, it's downright difficult and scary sometimes. But please don't feel bad for us or think that somehow our lives are diminished or impoverished in some way because of this medical condition. We have a wonderful, full life together, and our boys are absolutely, positively worth all of the extra effort. They are happy, healthy, bright, and truly the light of Justin's and my life. We would do anything for them.
~~We're not envious of those who don’t have food allergies. I have my burden, and you have yours. I don't have the time or energy to waste on feeling sorry for our state or wishing I could trade my burden for someone else's. Jacoby and Morgan come with food allergies, and I wouldn’t trade either of them for the world.
~~We need your love, support, encouragement, and prayers that one of these days all of those researchers currently devoting their careers to figuring out how to treat food allergies will uncover the hidden pieces to their origin, cause, treatment, and cure.
~~If you could experience for one moment our level of fear and concern when we think about all of the "what ifs" whenever our boys are out of our care, you would soon understand why some things like kindergarten are just not as simple or straightforward for us as they may be for other non-allergic families. And that's why we are considering other alternatives for our boys' schooling.
If we decide to keep our boys home for school, it will not be because I want to don a denim jumper and join the ranks of right-leaning Evangelicals who feel the need to shelter their children from the world. Nor will it be because the quality of education in the Boulder Valley School District is found to be sub par (quite the contrary, we’ve heard that families move to Louisville to attend our would-be elementary school). Believe me, if we home school our kids, it will be the most crazy and daring thing Justin and I embark on to-date, and it will be to keep them safe. That’s basically what it comes down to for us: safety. And yes, we know that our kids are not the first kids to ever have food allergies in a public school system (seriously, if one more person tells me that…). Jacoby will attend kindergarten at the public school next year if Justin and I feel that he will be safe and that his medical conditions will be taken seriously. Everyone has a different threshold when it comes to safety, and we know where ours lies when it comes to our boys and their well-being.
So, if you’ve made it this far, thank you for reading my treatise. I’ve been inundated the past few weeks with information on kindergarten, food allergies, homeschooling, and parenting, so I apparently had a few things to get off my heart! Please read the article, share it with someone you know, and hug (or send lots of cyber love to) an allergic child and/or their parent today (how's that for a soapbox?!)! (: They need it…I promise.


