For the concerns we have about his growth, the results showed that he has low levels of growth hormone. The allergist and our pediatrician were going to discuss this and determine if we need to see a pediatric endocrinologist. He also has high levels of eosinophils in his blood count which could indicate eosinophilic esophagitis, a gastrointestinal disorder that can occur as a result of or in conjunction with food allergies. He's not presenting with the typical symptoms of EE, so we're going to put him on a pretty strict diet, keep a food diary, watch for certain symptoms, and then have his blood tested again in about a month. They don't diagnose EE unless they can do an endoscopy and take biopsies, and since that's pretty invasive our allergist wants to watch things closely for another month before we make the decision to do the procedure.
So, that's the latest. I think we're going to start sending Jacoby to school with his own food since we're way past the point now of being able to expect the school to manage all of this for us. The low growth hormone and EE are both very treatable, but I feel like we still have some missing pieces to the puzzle to figure out before we can get hopeful about our course of treatment.
I can't really put into words what it's like to have something wrong with one of the most precious little people in your life, something that I can't see and can't fix. We have tons to be thankful for--all of this is being caught very early, our medical team in Boulder is amazing, he's otherwise healthy in all other areas, etc. etc. I know all of that in my head but processing it all in the heart is a completely different story.
Justin and Erin, Sorry to hear about the latest medical results. Our prayers are with you as you trek down this tough road. You are both amazing in your management of the little guy's needs and in your parenting of both boys, they are blessed to have you as are you blessed to have them! Much love, jill
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